C6 Series Recap (2 min) | Patient Engagement in Clinical Research, Children with Medical Complexity
10 seminars, over 10 months in 10 minutes. A knowledge translation celebration. Over 1,600 participants engaged in vibrant Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6).
C6 was an accredited (CME) 10-part seminar series building on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity. *Study link: https://pubmed.ncbi.nlm.nih.gov/21339266/
The series was led by complex care pediatricians Dr. Eyal Cohen and Dr. Catherine Diskin from the Hospital for Sick Children (SickKids) in Toronto, Canada, and Dr. Rishi Agrawal from Lurie Children’s Hospital of Chicago, as well as Family Voices representatives Nora Wells, Cara Coleman, and Kate Robinson.
Each one-hour seminar was hosted on Zoom and included a panel of national experts, both clinical and family caregiver. Seminars began with overview of the topic and a conversation on shared decision making in pediatric complex care. Each seminar was led by the family voice and lived experience perspective, followed by a clinical didactic and then a vibrant community Q & A. The goal was to build a community of practice. Attendees were encouraged to ask questions, share insights, and engage with the panel.
Family caregivers, youth, and friends of children with medical complexity (CMC) were welcomed to join along with health care professionals, researchers, policy makers, and anyone invested in advancing clinical care in CMC, through which a dynamic and vibrant community discussion ensued in each of the sessions. The interactive component was so successful that after the first session, the session length was extended by 30 minutes to allow serve the overwhelming response of community Q & A and resource sharing.
The C6 seminar series is funded through a grant from the Lucile Packard Foundation for Children’s Health.
C6 was implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Northwestern University Feinberg School of Medicine and University of Toronto/Sick Kids Hospital.
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